Cameron’s Speech Therapist // Update

Speech Therapist

It’s been playing on my mind a lot recently about the Speech Therapist’s assessment on Cameron that is due to happen this Friday.

In our last TAC meeting, I made it adamantly clear to the Speech Therapist, that there was to be no more Autism talk or assessments or anything to do with Autism full stop.

However as you probably know from my previous posts, the Speech Therapists aren’t one to listen to me and always go off on their own agenda.

So I tried ringing her last Thursday. She wasn’t available. So I left a message that under no circumstances was she to do any Autism assessment and she was to ring me ASAP to discuss.

I didn’t hear back. So yesterday I rang again. Quite angry this time. Fed up of her not returning my calls. Reiterated the same thing to the administrator.

Today I finally got a phone call back.

She told me that there would be no more Autism Assessments. The Speech Therapist informed me that she was going to Cameron’s nursery on Friday. She was going to spend time with him to get a bigger picture. It looks like she has finally listened to not only me but the Paediatrician.  She was going to do a assessment on how he understands language. The Speech Therapist still has it in her head that he doesn’t understand how to use language.

She also said that she would be having a meeting with her manager after to discuss the way forward with Cameron as she was now having to withdraw from being his Speech Therapist because she is an ASD Specialist.

Although this was good news as Cameron really doesn’t like her. I am a bit worried now that Cameron will not get the help he needs with his Speech. Not that he has been getting any anyway as it has all been sodding assessments. I fear that after nearly a year in the system we are going to have to start this whole thing again.

Again, we are playing the waiting game…

 

 

 

Speech Therapist

8 Comments

  1. mouse June 19, 2013 / 9:14 pm

    Urgh, I feel your pain. Our NHS SALT is a bloody shambles too. We have almost the opposite problem; Wriggles has a super understanding but can't articulate many intelligible sounds. We keep getting "oh but she's FINE!"-never mind that no one understands her apart from myself and close family. I threatened going private and a magical appointment suddenly materialised with NHS but have no high hopes. Some of my Sure Start centres have SALT provision-could be worth asking about? I know just how frustrating and maddening assessments are; but the good thing is if you ever do need any reports doing or applications for support, however small, a paper-trail of assessments is like gold dust. We have sod all from SALT which is now proving a real issue trying to organise support. Sorry to hear how stressful it is….and for epically long comment! x

    • admin June 22, 2013 / 8:23 pm

      I think our Sure Start Centres are combined with our NHS SALT. Which is annoying. We would have never been in this situation if the first SALT hadnt mentioned Autism just because Cameron is very bright with Colours, numbers, shapes and the alphabet.

      Since then I have fought and fought to prove he is not.

      But I have just written a post on how I have finally been proven right and that Cameron does not have problems understanding language. Am over the moon and smug at the same time!!!!

      If you ever need to talk hun, feel free to email me.

      Laura x x x

  2. Izzie Anderton June 21, 2013 / 10:33 am

    Thinking of you as it's now Friday and hoping that all is going well with the assessment.

    • admin June 22, 2013 / 8:24 pm

      Saw you post this yesterday and this made me well up. Thank you for thinking of us yesterday. That meant a lot.

      Have just written a post on how I have finally been proven right and that Cameron does not have problems understanding language. Am over the moon and smug at the same time!!!!

      Laura x x x

  3. Christy Garrett June 22, 2013 / 5:03 am

    Maybe you can ask for a different therapist due to personal conflict. Don't give up if she isn't willingbto help, keeping fighting for your baby and you will find some that relates to you, listens to your concerns, want what's best for your son, and willing to help him. Good luck mama.

    • admin June 22, 2013 / 8:25 pm

      Shes going anyway cause she is a ASD specialist and Cameron doesnt have ASD.

      Thank you for your kind words

      x x x

  4. Chloe Brewer June 22, 2013 / 8:29 am

    I really feel you on this exactly. Joshua has just been diagnosed as being on the Autistic Spectrum with a sensory disorder too. This diagnoses came after a year in the system with a speech therapist (who we also stopped seeing for various reasons) and a portage worker who would visit us at home once a fortnight to 'play' but also to teach him. His speech has been improving but I had prepared myself for the diagnoses because Josh does have behavioral differences to others his age. At our week long assesment they explained to me the difference between speech and communication and language etc and it really opened my eyes. Obviously it wasn't a diagnoses we wanted but I do know that now he will get all the help he needs and I am already starting to see vast improvements with his speech (this was already coming before his assesment/treatment). I really hope that you can get the help you need too for Cameron and from one Mum to another-label or no label, they are still our wonderful children! And ultimately you know best for and about your son, so don't be afraid to follow your gut even if it leads to difficult questions/places xx

    • admin June 22, 2013 / 8:27 pm

      Thank you for your kind words hun.

      The system is such a mess at the moment. There has been a significant increase over the last few years with children with ASD and Speech Delays and SALT departments just cant keep up with them.

      If you ever want to talk, please feel free to email me.

      Laura x x x

Leave a Reply

Your email address will not be published. Required fields are marked *