Cameron’s Tac Meeting // 24.05.2013

TAC Meeting

Today was Cameron’s 2nd Tac Meeting. This follows on from the Home Visit we had from the Speech Therapist. You can read what happened at the 1st Tac Meeting here

We didn’t go to see her in for an understanding of Language Assessment a few weeks ago because Cameron had Gastroenteritis.

Meeting started off well, talking about Cameron’s strengths and what he had improved on.

Then it got round to the Speech Therapists turn. She brought out her little document that she had recorded the 45 minute assessment on and claimed that Cameron was indeed on the Autism spectrum  having scored 14 points. 12 were needed to be put on there.

So I explained once again, so everyone is clear that we are NOT doing an assessment for Autism as he doesn’t have it. You CAN NOT make a diagnosis of Autism after a 45 minute appointment!!!

Then the meeting turned into the battle ground it did at the last one. Me fighting it out with the Speech Therapist trying to disprove everything she was saying that Cameron had problems with.

I asked for actual speech therapy but she believed it was too soon for Cameron to be attending as she still needs to assess his understanding.

Its all complete bollocks, it really is. I just broke down in tears. It shouldn’t be this hard. Cameron should just get the help he needs.

So where do we go from here?

Cameron will be assessed with his understanding at nursery at the end of June. Hopefully if he ‘passes’ this, he will finally be referred over to have proper Speech Therapy.

The next TAC meeting will be in September.

In the meantime all Matt and I can do is try to help him at home the best we can. Our method of breaking down words seems to be working, slowly, but it is working. I asked for this to be done in the nursery setting but the Speech Therapist argued against it. I think I will have a word with his nursery after half term.

 

 

 

Photo by Hope House Press on Unsplash

TAC Meeting

18 Comments

  1. Jane Roberts May 25, 2013 / 7:29 am

    This post has made me so angry. A speech therapist can not tell you your son is on the autistic spectrum, they can only refer you to a doctor. It is against their code of practice to do this, my friend is a speech therapist and even as a friend she would never commit if she thought Ethan was autistic. The only person that committed the words "Your son is autistic" was the doctor at the results meeting, and only at the results meeting. Everyone we saw never wanted to commit their opinion because it would be wrong to do so. This really wants to make me complain about her…

  2. admin May 25, 2013 / 7:44 am

    She did the test on him without my consent, the message wasn't passed on to her from the previous ST that looking into a diagnosis of Autism for Cameron was now off the agenda.

    Her report will now go to to the Paediatrician who will make the final decision after seeing Cameron. Although that report should be invalid now because of mine and Matt's request.

    If I seriously thought there was a chance he could be Autistic then I would fully support any testing, but like I keep telling everyone, the only problem is his speech. I have spent countless nights doing research on Autism and it just doesn't add up.

    The first ST we saw got it into her head he was because of his love of learning, and it just exploded from there.

    Fingers crossed they now drop the whole thing and concentrate on getting him to talk.

  3. Jaime Oliver May 25, 2013 / 9:02 pm

    awww honey i think this women is getting paid on commission! i am sending massive hugs x

    • admin May 28, 2013 / 9:28 pm

      Thank you lovely x x x

  4. anna May 26, 2013 / 12:03 am

    I remember your previous posts about this speech therapist I think! what a pain and why cant they give him speech therapy meanwhile if they are assessing him or waiting to assess him?? there is still basic speech therapy that they could do?

    Is it the speech sounds you are wanting him to work out but this slt is saying no?? I actually had similiar in a sense. My son does have autism but he also has a speech disorder in addition to that, which he needs specific targetted thereapy for. I raised this with one of the slt and she was saying oh no theres nothing to suggest he does have that speech disorder (he was later diagnosed with it!) and that we shouldnt encourage him to do speech sounds etc?! he is now doing those speech sounds with private, and it does help. i had another private one before too who was crap and wouldnt listen to me at all. insisting on doing certain basic things when i wanted him to be moved on a bit, and she was telling me hes not capable at all, when he was!

    do you think he has a speech disorder or just delayed speech? cos im just thinking that sometimes speech disorders like verbal dyspraxia which mine has, theres quite a bit of cross over with some of the traits you do see in autism even though a lot of children with it are not on the spectrum. i guess you would have researched all these things already. but i found that not many slt are willing to consider these kind of disorders unless you get the rare few who really specialise in it. many of the nhs generalised slt dont seem to want to consider anything like this at all.

    good luck with it all! you just keep fighting for him to get the right help he needs, and he will get it.

    • admin May 28, 2013 / 9:33 pm

      Hi Anna

      Any speech therapy with Cameron to help him move along would be brilliant for him. He can say lots of speech sounds he just needs to start using them. He just wont put them together. He will hum the bit he cant say. For example Seven is now 'se' 'hmm'

      However…. not sure whether it is a disorder or a delay. I have done lots of research about verbal dyspraxia and that does seem to fit Cameron. However ST's dismissed it. Funnily enough the specialist who deals with it is on long term sick.

      I have been so stressed about it over the weekend, I actually rang his paediatrician today and told her everything that has been going on. She is going to be talking to the ST and hopefully we will now make some progress.

      Laura x x x

  5. Carolynne May 26, 2013 / 8:58 am

    Aww I feel for you. There is nothing more frustrating than not being listened to. You know your child best, as I have discovered recently with my own issues! Keep strong and remember that most children get there eventually xxx

    • admin May 28, 2013 / 9:34 pm

      Thank you Carolynne. I have made some progress today, so that has made me feel a bit more positive x x x

  6. Tori Wel May 26, 2013 / 7:25 pm

    I am with Jane, this woman is NOT qualified to make a judgement and why are they not listening to you?! YOU are his Mother for crying out loud!! I hope this all gets sorted lovely. Thanks for linking to PoCoLo x

    • admin May 28, 2013 / 9:35 pm

      Im hoping next week I can link a positive PoCoLo instead of moaning about textbook Speech Therapists.

      Thank you for hosting again hun x x x

  7. Erica Price May 27, 2013 / 9:24 am

    It's annoying that you have to jump through so many hoops to get what he needs. Surprised that she was so eager to try to diagnose autism especially on so little evidence.

    • admin May 28, 2013 / 9:37 pm

      So am I to be honest.

      But I have put a stop to it now. Hoping Cameron can get the help he needs now that the diagnosis will be dropped x x x

  8. MummyTries May 27, 2013 / 5:36 pm

    This kind of stuff makes my blood boil, it's also terrifying that these people want to put labels on such small children. Be strong and always trust your gut xx

    • admin May 28, 2013 / 9:39 pm

      Thank you lovely. I can understand the need to label kids in order to help them. But the label needs to be 100% accurate. The things they are saying about Cameron are 100% NOT accurate which is why I have kicked up so much about it x x x

  9. Vicky Charles May 28, 2013 / 9:00 pm

    That speech therapist sounds like a bit of a dick – can you get a second opinion? Whether he's on the spectrum or not, surely he'll need speech therapy, and the fact you're having some success with him at home suggests he will respond to therapy and learn to talk so why not start it now.
    Just remembered my brother had to have speech therapy when we were kids, I think his speech was delayed. But he was gobbier than the rest of us put together by the time we were in proper school!
    Previous commenter is right – it's a bit early in his life for a label that might never be removed. If they get it wrong they could damage him more than if they give him a little time before deciding. If he is autistic, he'll still be autistic in a year or two years – but if he's not he might have come on in leaps and bounds and proved them all wrong. Good on you for standing your ground.

    • admin May 28, 2013 / 9:45 pm

      I think she is a bit textbook to be honest. Her report is now invalid because she did the assessment without mine and Matt's permission, which she can get into a lot of trouble for if I decided to take it further.

      The paediatrician has agreed not to do the Autism assessment without my permission. So I am hoping now we can concentrate on getting Cameron the help he needs.

      Laura x x x

  10. Chloe Brewer June 22, 2013 / 8:45 am

    I am in TOTAL agreement that Autism CAN NOT be diagnosed after 45 minutes! How ridiculous! And a speech therapist CAN NOT diagnose it alone, it's takes a qualified pediatric Consultant along with a psychologist, occupational therapist AND a speech therapist to diagnose it together. But without the consultant, it wouldn't ever be diagnosed at all! This person sounds a little too big for their boots if you ask me! A speech delay doesn't always mean Autism anyway! Although my almost three year old has recently been diagnosed as Autistic after our first concerns from his speech delay grew in to other concerns. Although he's on the mild end of the spectrum it's not a diagnoses anyone wants. But I must stress that if that label is being branded around then you need to speak out and get the proper assessment, I know you don't want him to be assessed for it but hear me out-the assessment lasts a week and then ends with a round table discussion by all the relevant people, including care workers from your child's nursery. If he doesn't have autism and you're right, then at least he will get the best care for his speech delay because he will be in the proper system-not just a half baked one as this lady is trying to manufacture. I strongly believe we as Mothers know our children best! So don't think I'm trying to say he might be autistic, if you feel he's not then it's most likely he's not because as his Mummy you will KNOW. That's our job, and we should ALL follow our gut) I'm just saying if you follow the channels you're being led too, then perhaps doing so will make the right help available to help Cameron's speech further?x

    • admin June 22, 2013 / 8:34 pm

      Its all been a bit of a shambles. Too many SALT's involved. Then they go off sick. So we get transferred. But Cameron has now been assessed and they say his understanding of language is perfect!!

      It was only the SALT who thought he was autistic. At the TAC meetings, which is the HV, SALT, SENCO and Cam's key worker, it was only the SALT mentioning Autism.

      x x x

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