Desperation // A Call To The Paediatrician

This post follows on from Cameron’s TAC Meeting

The events that went on in the TAC meeting had been haunting me all weekend. We were told that the Autism diagnosis would be dropped, but we were told that the last two times. What made this time any different?
It suddenly occurred to me that Cameron’s Paediatrician had been receiving all the reports from the Speech Therapist. These were the reports that were full of inaccurate information, claiming that Cameron was indeed Autistic. The Paediatrician had not heard things from our perspective.
After leaving the Paediatrician a message to try to get her email address she rang me. We had an hour long conversation about what had been happening and the failings of the Speech Therapist.

We came to the following conclusions:

  • Only the Paediatrician can make a final diagnosis of Autism. And she would not be rushing into it, because as she said at our meeting back in January, she was not convinced that Cameron had Autism.
  • The Paediatrician is not allowed to make a diagnosis of Autism without my consent. So with that information we have agreed not to do any more assessments on Autism.
  • The Paediatrician explained that a child may have Autistic Traits but may not be on the Autistic Spectrum
  • She will be going into Cameron’s nursery to observe him herself with the Speech Therapist or on her own.
  • Whilst we are not going down the Autistic route any more, she did explain to me that she would have to be honest with me and if she thought Cameron had any traits of Autism then she would have to tell me. I told her, I don’t have a problem with that as long as what she is saying is 100% accurate.
  • She will be ringing the Speech Therapist to see exactly what the hell is going on.

So despite crying like a baby down the phone to her, the phone call was ended on a positive note. I felt a lot more reassured that now the Autism diagnosis will now be dropped and now we can start getting Cameron the help he actually needs.

 

 

 

Photo by William Iven on Unsplash 

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3 Comments

  1. Lous Lake Views June 1, 2013 / 4:01 pm

    Oh honey, it all sounds so frustrating but good to hear someone is listening, finally.

  2. Jaime Oliver June 1, 2013 / 8:01 pm

    Thank goodness someone that is not only listening but sees sense too!! about time! sending hugs my lovely x

  3. Tori Wel June 2, 2013 / 5:43 pm

    It's about ruddy time that someone listened to YOU in all of this!! I am so glad things are getting easier for you :). Love the new header on your blog, gorgeous. Thanks for linking to PoCoLo xx

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