Speech Therapist // Home Visit

Speech Therapist

Following on from Cameron’s Tac Meeting, we had a ‘Specialist’ Speech Therapist visit us this afternoon. However this was not the same Speech Therapist that had been attending Cameron’s TAC Meetings. She is now on long term sick. So this ‘Specialist’ was to come to our house to assess Cameron, having not met him previously and only going on notes she may or may have not read.

First of all she was late, I hate late people with a passion.

When she finally turned up. She came in and introduced herself to us and Cameron and sat down with the big box of toys she had brought over.

The Assessment

Cameron was really intrigued with the toys and wanted to play with all of them. She played with the toys with him. Gave him some tasks to do, like pretend a brick was a car or a frog or a plane or feed some Play Doh birthday cake to a doll and then make the doll go to bed. Cameron did really seem to enjoy himself, however he was tired from going to bed late last night and also having nursery this morning and that was apparent through this ‘assessment’.

We thought he did really well, but apparently that was just our opinion.

The Speech Therapist then gave us her conclusions. Baring in mind her conclusions are based on spending less than an hour playing with Cameron. She had never met him before and Cameron was just supposed to play with this random stranger who had entered his home. Lets also not forget the fact that he was very tired.

The Conclusion

Her conclusions were the following:

  1. He has limited eye contact
  2. He has problems smiling
  3. His pretend play is not up to scratch.
  4. He doesn’t know how to communicate – For example to ask for things
  5. He is most definitely on the Austism Spectrum.

How I did not kick her out my house for these inaccuracies, I will never know.

Our Points Made

Cameron was faced with someone he did not know and expected to behave how he would behave with say me or Matt. That is stupid! Cameron will not really pay attention to people he does not know. He has perfect eye contact with those he does know.

Cameron does not have a problem with smiling. He is the happiest little boy I know and he is always smiling and laughing! Cameron can not be forced to smile if he does not want to, the same as you or I cant. So for her to come up with this is damn annoying. Even with his 6 week check up he was smiling, and smiling has never been an issue with him!

Pretend Play not up to scratch? REALLY!! What are the guidelines for a nearly three year old with pretend play? Cameron likes factual stuff. A car is a car, a plane is a plane! That does not make him Autistic! And also he spend 3 hours with my sister yesterday, playing Dr’s, Vets, Shops and playing with toy people going down a slide. So again she is WRONG.

Of course he can not ask for things in the way we would like. He has a SPEECH DELAY! Cameron will ask for things, by hand gestures or humming or taking us the object he wants and saying ‘Yes’ When we have found out what he wants.

And lastly, this ‘Specialist’ is looking at the Autism Spectrum. You may remember me saying that in the TAC meeting, it was agreed that Autism would not be looked into any more, instead focusing on Cameron’s needs. i.e. Help with his speech.

The ‘Specialist’s’ Reponse

When we told the Speech Therapist this she said that she was not told this. She literally then ignored everything we said and was going ahead to do the conclusion to where he would fit on the spectrum. Livid is an under statement. She is convinced he is Autistic. A Health Professional is convinced my child is Autistic in less than an hour time spent with him in one setting

So where do we go from here?

A meeting has been set up in a couple of weeks time to assess his understanding of things. Another thing she said he is lacking in. Which is total rubbish!

I have rang the Health Visitor and she is not sure what the Speech Therapist is playing at with the Autism stuff. She is going to ring her and find out.

My Mum, is not happy with how Matt and I are being ignored when it comes to our knowledge of Cameron. She knows we are right with what we say. She see’s Cameron, she sees that he does all the things we say and she thinks the Speech Therapist is wrong! So she is coming with us to the next meeting to ensure that we are heard. I will not have Cameron labelled with something he is quite clearly not.

 

 

 

Images from:

Markus Spiske

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18 Comments

  1. over40andamumtoone April 19, 2013 / 8:11 am

    Bless you, what a nightmare. My Monkey has suffered with delayed speech but luckily we seem to be moving in the right direction now. I would also say seeing a child of your son's age in the afternoon is never the best thing to do – if like Monkey, they will be tired and not as full of enthusiasm as they are in the morning. Seems amazing that she could reach those conclusions in a very limited time and without listening to the people he knows best. Good luck with the next meeting #PoCoLo

    • admin April 19, 2013 / 10:05 am

      I still honestly believe that Cameron does not have the ability to make his mouth form certain words like 'o' for example. This is what I have asked over and over again to be looked at.

      The Speech Therapist apparently specialises in Kids on the ASD Sprectrum so apparently an expert. But in my eyes, an expert would spend more than an hour to make an adequate judgement.

      I will continue to fight this, if he is Autistic I don't care, I just want 100% proof that he is, not some judgement made on one visit.

  2. anna April 19, 2013 / 8:24 am

    But Speech therapists are not qualified to diagnose asd without a paediatrician there with them? So that is a little weird? Sounds like she tried to do some of the ados tests on him, and she can give an opinion based on that but not try to give a definite diagnosis..?
    I know what you mean about late and some slt or health professionals just rub you up the wrong way! shame your original one is sick tbh as it would be nicer to keep the continuity. Hope you get some help for your son with some professionals who do take your views on board while they are working
    came here through #pocolo

    • admin April 19, 2013 / 10:16 am

      No, they are not, but they give their report to the paediatrician who will make the final judgement. The paediatrician has already seen Cameron and she has seen the side of Cameron that we always see, not the side that the Speech Therapist(s) see.

      It was the Ados tests she was doing, thank you for reminding me of the name.

      However. At the last meeting, we agreed that the Autism would be dropped, it was not to be investigated, instead we would concentrate on Cameron's needs and look into Dyspraxia. That is what I am mad at the most, because they went back on what they said they would do.

      The original one was actually our 2nd one, she was just as bad. And the first one, well she just ended up upsetting Cameron. We are not having a good run of luck.

      Thank you for taking the time to read my post and comment

      Laura x x x

  3. Harrovian Mama April 19, 2013 / 8:40 am

    Oh my gosh, I am so glad I read this. I have a HV who is convinved my daughter is Autistic. I am absolutely baffled. My daughter loves engaging with people-to the point that we have to start talking about stranger danger! She loves role-play games and cooking in her 'kitchen' or taking dolly to 'work'. And yet the HV is convinced she needs to see a speech therapist for autism diagnosis because my daughter once had a real sulk about getting weighed at the clinic. She didn't want to take her clothes off in the cold room and the HV said she was 'abnormally difficult'. I would have liked to see the HV undress in that room!

    I have played 'nice' until now because I didn't want to be difficult but I will not have my daughter given a diagnosis for something she doesn't have. Autism is serious and by labelling every child who ever has a tantrum or sulky moment in the presence of a HV 'autistic' completely demeans any child who actually HAS autism and any parent of an autistic child who struggles to get the support they need.

    So glad I found you through #PoCoLo and I will definitely be back to read more. I have no idea how I will proceed from here!

    http://www.samandasha2.blogspot.com

    • admin April 19, 2013 / 10:12 am

      The problem is the ASD Spectrum is so vast, we could all literally be put on it.
      I think your HV is bang out of order, to be honest I really dislike HV's and keep mine at arms length at all times.

      I think you should sit down with your HV and a witness and talk to her about it. ask her exactly why she thinks your daughter is on the Spectrum and fight it all the way. You know your daughter better than anyone else.

      I hope you get it sorted out hun. I will keep you posted about Cameron's prgoress and will also have a look at your blog tonight when I get home. I am using a library computer at the moment and the only Internet Browser available is IE which my blog is not liking

      x x x

  4. Notmyyearoff April 19, 2013 / 8:58 am

    Its so hard when you get a visit for about 30 minutes from a complete stranger and they expect your child to do cartwheels and sing every song they know. My son hid behind me about 99% of the time on his 2 year check!! I hope the HV can sort it all out for you!

    • admin April 19, 2013 / 10:18 am

      Thank you for taking the time to comment. We are on a long and winding road where there are too many people getting involved. At the next meeting we have, I am going to have to tell them straight that they are going to have to get their acts together for Cameron's sake or they will just end up making the system fail him! x x x

  5. Anonymous April 19, 2013 / 10:29 am

    Popped over via #PoCoLo, always avoided HV's like the plague, found them intrusive and didn't really help.
    Hope you get some reassurance soon.
    Jeannette http://www.ditchflabgetfab.wordpress.com

    • admin April 19, 2013 / 10:53 pm

      I too avoid them, I find they are generally useless! The first one we had treated me like I didn't know what I was doing… she had to go. The 2nd one learnt very quickly not to bother me unless I specifically asked for something.

      Cameron's pre-school are going to be requesting that the Speech Therapist attends the Pre-School to witness for her own eyes what Cameron is like in that setting. So fingers crossed that will help.

      Thank you for commenting

      x x x

  6. sara carvosso April 19, 2013 / 4:19 pm

    oh man that sounds awful! its horrid when people say things about your children when you know different! when my son started school they would constantly go on that he has adhd because he didnt sit down for long periods! or want to to anything but play outside! it used to make me so angry one time they said he talks to the teachers as if they are his friends! wasnt sure what that one meant! lol!

    Hope everything gets sorted and you get someone who is understanding to your childs needs!

    • admin April 19, 2013 / 10:55 pm

      It seems all they want to do is put a label on Children nowadays. Children just cant be children and that is a sad thing.

      Sounds like a healthy little boy to me. Cameron is the same, he wants to be out as much as he can be, he is into everything and that is normal!

      I think we have a long battle ahead but we will get there in the end.

      x x x

  7. Tori Wel April 20, 2013 / 2:18 pm

    I think that the only people who know about your children in absolute fullness is YOU – the parents. When they feel something is wrong with their child then they should be listened BUT if they feel then there isn't then they should be listened to in the same way. How can anyone make any judgments on anyone – especially a child – when spending less than an hour with them!?! Ridiculous. Thank you so much for displaying my blog badge btw, I am really chuffed. Also, thank you for linking up to PoCoLo – it heartens me to see how supportive everyone is 🙂 xx

    • admin April 21, 2013 / 9:32 pm

      If Cameron actually did struggle in the things that she says he is struggling in then I would be a bit more relaxed, but she is talking absolute rubbish! And that is what frustrates me. We will get there in the end! Long road ahead, but I will fight for him!

      You have really brought the blogging community together hun. x x x

  8. Jaime Oliver April 20, 2013 / 5:29 pm

    wow i am shocked that a decision as large as that will be confirmed in her mind in a short space of time! children behave differently in front of different ppl! gobsmacked!

    • admin April 21, 2013 / 9:33 pm

      Well I suppose her angle is seen one, seen them all! It's not final yet, and I will fight it all the way! x x x

  9. Lous Lake Views April 20, 2013 / 8:04 pm

    Popped over from the PoCoLo link up and just wanted to say how awful your situation sounds but you absolutely are NOT a bad mother for getting your mum involved. I sometimes think 'professionals' won't listen to us mums because they think out opinion is too biased so coming from someone else should help, although it is quite ridiculous that you need to go to these lengths to be heard. Shocking behavior from the speech therapist. I hope you can sort it all out soon

    • admin April 21, 2013 / 9:34 pm

      Thank you for your support hun. Still waiting for the HV to get back to me to tell me what the Speech Therapist said in my disgust about the way things are being handled. x x x

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